Sclerosis; MS; The Monster; The Beast: there are so many names for
this disease that people refer to it as. "Oh the monster is
showing it's ugly face again today" someone might say when
experiencing some sort of flare. I have never called my MS anything,
it just wasn’t me, I always felt a lot of these names were too...
cute? They didn't do the evil known as Multiple Sclerosis any justice
is what I mean I suppose. For my MS, I called it as it was
because nothing really seemed to fit my MS as I experienced it, so no
nickname for me.
I got an email from a fellow MS'er and she brought up the name thing
and what she called it asking me if I had a name for mine. I answered
"no" and pretty much left it at that. Then I sat down for
lunch flipping Netflix on to watch "Dexter" as I have been
doing every day for the last couple of months or so (awesome show).
As I watched I was still thinking about this email I had just
received. Then it hit me. Dexter refers to his urge to kill as his
"dark passenger" that sometimes he could control and
sometimes would get the best of him. That's it! My dark passenger!
MS! My MS is my dark passenger.
am on a ride along life that I was hoping would be just me and maybe
a nice girl someday. Kids? Who knows. But now it seems that something
else has hopped on along for the ride. Multiple Sclerosis. My
dark passenger. I now have to ride through life with this dark
passenger that I don't want riding along with me but unfortunately it
is in it for the long run. This uninvited passenger is doing
everything it can to slow my ride down or even derail it. Most the
time I can control it, suppress it, keep it at bay, but sometimes it
wins. Sometimes my dark passenger takes ahold of me forcing me to lay
down in bed or stay in a hospital. Sometimes my dark passenger
makes me do stupid things, forget important information, names,
dates, and sometimes my dark passenger causes me pain; both physical
and emotional. Sometimes you may try to talk to me and think "wow,
Matt is not himself today, he is being a bit of a jerk". Well
that would be my dark passenger. It has greatly altered my life and
now it finally has a name but that doesn't make it any more powerful.
This is the name that I gave it, I gave this evil a
name because I own it. So now? Now I own it a little more.
Labels: Progress Update