Sorry About the Sound!
Saturday, March 31, 2012
Wednesday, March 28, 2012
Progress - Walking and Making Bed (Video)
Practicing some PT and OT stuff, "wa!king" and making my bed!
Tuesday, March 27, 2012
Monday, March 26, 2012
Oh My Gosh, WHERE Has Matt Been???
Yes! I disappeared! I was practicing being a magician! JK... I had a horrible exacerbation, the worst I have ever had, this has started Chapter 2 of my MS life, “Exacerbation 2.0” as I may sometimes call it.
OK SO, Right now I'm not going to describe my experience in detail, that will come later... For now I just want to get you up to date so that I can continue using my blog as a place to post my progress updates and so I can keep everyone up to date as to how I am doing but in order to do that I need to tell you where I am coming from! Plus I just can't leave you all hanging after all of that!
Note: I'm still in major recovery mode in fact, I'm currently using voice recognition software as I can barely use my hands at the moment so I will do what I can.
So where was I really? Well as much as I would like to make you believe that I was at school to become a magician the truth is I was in the hospital and rehab for this horrible relapse of mine, Exacerbation 2.0. Six weeks I was stuck in there, not long compared to some of your stays I know, but it was horrible! With the help of rehab I started getting better and better to the point where it looked like I was going to go home.
Just a few days away from my release date I relapsed again... Turns out I had both a lung and bladder infection... So I was back in the hospital in a near vegetative state. I couldn't move or do anything for myself, the nurses had to do everything. To illustrate just how helpless I was there was one point where I could not stop throwing up for whatever reason and in order to not drown in my own vomit I managed to tilt my head to the side causing me to throw up in my ear. MY EAR!!!! I had to lay there in the dark for about 20 minutes like that... I could not even move my arm enough to clean out my ear while I waited for a nurse to come... It was a horrible experience but I learned a lot from it.
After a while they sent me back to rehab and it was back to square one although my rate of recovery was much quicker than it was before so that was good. It looked like I was getting ready to go home as my arms and hands were a lot better. I could move my legs, sit up, stand, and even take a few guided steps with the Walker and a therapist every few days. I couldn't see very well and I had a bunch of other symptoms making life difficult but I was getting better, I could swallow again so I did not have to eat pureed food, yaaaaaaaaaay, that really did help.
Okay bear with me, I realize my writing does not have as much flow as it usually does and I'm sure there are a good amount of spelling and grammar issues, stupid voice recognition software..... Wait... Without it I couldn't even be able to write this much... Need to learn to appreciate all the little things...
Okay so I in no way captured what my experience was like but like I said, just trying to let you know what was going on so that you can know what I am talking about when I talk about it. Let's see... Hospital... Rehab... let's go over some of the symptoms...
- Severe cognitive impairment
- Severe speech impairment
- Severe memory loss
- Fine and gross motor skill loss
- Loss of ability to swallow
- Loss of sensation in hands and arms
- Loss of sensation from knees down
- Major drop foot
- Inability to properly control legs
- Partial loss of sensation everywhere
- Major loss of vision
- Bladder issues
- Voice severely weakened
- Severe, severe, severe spasticity in legs
- Vertigo
- MS Hug
- Loss of coordination
I will try to post whenever I can but since I am still in major recovery mode it may be a while, I will not be posting as often as before, that, or my posts will just be really short updates. Hopefully my writing will get better soon and if not I will be posting videos. Once I can type again I will write about my wonderful experience in the hospital but for now we will have to put that on hold.
Thank you for reading and thank you for all your support!
Saturday, March 24, 2012
Progress - Man...
I have been so tired lately, I've just been wanting to sleep all day... looks like it was due to some of my medication. I cut one of them in half and I feel great today! I am eliminating at least one more from my cocktail so we will see how it do in the next few days.
I think that just with this extra energy I will be able to start writing a little bit, not a lot, but a little on my blog so don't expect some long postings because I just can't do it yet. I am using that voice recognition software again but it makes so many mistakes so it's kind of frustrating but without it I can't write it all, well not much, just as much as I can with each pointer finger... not much...
anyways I will try to start blogging on Monday so keep an eye out, thanks for reading!
Wednesday, March 21, 2012
Progress - Matt Is Home From Rehab!
That's right, I'm home! Not fully recovered yet but they let me free! Will try to start writing some this weekend, will TRY. Haha be back soon!
Tuesday, March 13, 2012
Almost Done
Been recovering at a decent rate. I plan on leaving rehab for home Friday evening so we will see! Should be posting soon!
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Friday, March 9, 2012
NOT DEAD HAHA....
HEY ALL, GOT LUNG INFECTION WHICH MADE ME RELAPSE AGAIN...WENT BACK TO HOSPITAL AND NOW BACK IN REHAB STARTING ALL OVER. BEEN HORRIBLE BUT I AM ALIVE AND MAKING PROGRESS SO DO NOT WORRY. BE BACK ASAP!
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