Wednesday, February 15, 2012

Been in Hospital but OK!

HEY EVERYONE! SO SORRY I DISAPPEARED! CAN HARDLY TYPE SO HAVE TO KEEP IT SHORT, DETAILS TO COME. BEEN IN HOSPITAL AND REHAB WITH WORST RELAPSE EVER BUT DO NOT WORRY, I AM OK. WILL POST BETTER MESSAGE SOON AND WILL TRY TO RESPOND TO MY MANY MESSAGES ASAP!


SORRY FOR THE SCARE AND THANK YOU ALL FOR YOUR CONCERN! I WILL BE BACK SOON! :^b

-MATT

37 comments:

  1. SO sorry for the bad relapse!!!!! :( Hang in there!!

    ReplyDelete
  2. Oh Matt, you frightened the hell out of us all. We were all so woried. FaceBook nearly had a melt down. Glad to here you're ok, but not that you've had a relapse. Sort of going through the same thing at the moment. I'm off work for a couple of weeks. Missed you heaps mate. Praying for a speedy recovery.
    Stephen Bleeker

    ReplyDelete
  3. So relieved you you can still have such a warm attitude when you have just been through hell! Sad to hear you had a relapse, and a severe one at that. So concerned for all of us, with MS, but especially you right now. I must say, I was, along with everyone else so worried about you and sending you prayers that you were going to be okay. Now we will all send you our energy of healing for a quick transition into remission!
    I can understand how hard it must be to type right now, but even a line or two, here or there will be wonderful.
    We all care about you!
    Mare

    ReplyDelete
  4. linda barry mac manusFebruary 15, 2012 at 3:38 PM

    phewwwwwwwwww was so worried bout u hun ...missed u heaps... wish i could be there to give ya a big hug... praying u feel better soon.. Chudleigh misssed u too ...

    your friend
    Linda B M

    ReplyDelete
  5. Matt, I tried not to set off alarm bells, but after day three I just *knew* you were dealing with an exacerbation! I am glad you are out of the hospital and I wish you the speediest recovery in history!

    I know you are busy getting well, but when you feel better I posted about what a group I belonged to in the past did and it might be beneficial to our group. It was an MS message board and we had a buddy system. We each had one person that we had contact info on - either e-mail, phone #, whatever. That way if something happened, there was a way to get in contact with them and let the group know. We might want to consider doing something like that on MS is BS. In the meantime, just focus on getting better and know that we all care about you. :)

    ReplyDelete
  6. Matt-
    Glad to see you back online even if for just a bit. Lots of people out there worried about you. Take Care!
    Brenda G

    ReplyDelete
  7. So great to hear from you. We were all so worried.

    Do you what you need to do to get better.

    Sending gentle get well hugs xoxox

    ReplyDelete
  8. I'm so glad you're still with us Matt. It's amazing how a thing like this shows how important you are to so many others. We all missed you so much!

    I was hoping you'd found a gorgeous lady and was enjoying life somewhere beautiful with her, oh well!

    Get well soon, but don't rush things!

    ReplyDelete
  9. MS Cherokee, that is a great idea, maybe we could do something similar on MS is BS

    ReplyDelete
  10. Wow matt wow! ditto everything everyone else said... Dont push yourself, give it time. In the mean time, im betting your bored shitless & want a distraction... so here goes... I sent all my records to local MS clinic. They got back to me right away, & granted me an appt 2 months away. They only take patients who do, or suspect might have MS (Im undiagnosed). Saw my PCP today. He again reminds me of the fact my 1st round of tests were negative, again i remind him of the fact MS can be very hard to diagnose. If i gave him a test on MY medical history he would FAIL. He actually STILL thinks there is only one parathyroid gland in human body, even after i (his patient for a year) had to have one (of FOUR)removed (NO thanks to him). The other three take over nicely, but he STILL comments on how i should be taking massive amounts of vit D to make up for it (Idiot). Please, can anyone share their doc / diagnosis nightmare? Matt dont respond, save your strength...

    ReplyDelete
  11. Aw shit, Matt - I hope you get well again soon! Bloody BS.
    (Sophia H. Potamus)

    ReplyDelete
  12. Matt,

    You are obviously such a sincere, caring, nice, kind young man. That's why everyone loves you so. I feel real bad for the things you must be going through.

    God loves you, Matt. His eye is ever on you -- don't forget that!

    ReplyDelete
  13. WELCOME BACK
    WE MISSED YOU :D xx

    ReplyDelete
  14. Thank God you are out and are recovering, I like the rest was worried. Hope you feel lots better soon, we all missed you and enjoy hearing from you. MS is an nasty little problem but keep fighting and know we have your back.

    ReplyDelete
  15. get well and get back soon Matt
    Dao

    ReplyDelete
  16. Hi Matt,
    Just dropping a line to let you know I'm thinking of you every day and hoping you are getting back to your strength and vitality and where you want to be. Wish we knew "Superman" so he could look with his xray vision, to see exactly what is happening inside our brain and CNS, since there is no one yet who can do that! lol - what a wish!
    You are one of our Super Heroes....and I sure look forward to when you are well enough again, to post on your blog and to be in remission ... for a very, very long time!

    Mare

    ReplyDelete
  17. If you feel like it, try to comment so we know you are okay. You really do give hope to others. That is quite a calling. Hope you are okay!

    ReplyDelete
  18. Matt,
    I am new to your blog as i was just diagnosed with MS on Feb 14th. I was searching for some answers and found your blog informative and helpful. i hope all is well with you and that you recover soon. Until then ill look forward to your next post.

    Bobby

    ReplyDelete
  19. Hang in there Matt! Hope we'll be seeing you back real soon - I just sent you a FB friend request. I would like to join your MS as BS group. Take care of you.

    ReplyDelete
  20. Just got back from another disapointing neuro visit. Im undiagnosed. Again neuro told me i dont have MS, but fails again to tell me what i have, or why i have symptoms VERY similiar to MS. she tells me i cant have MS cuz i only have 3 lessons (ironically the Left side, same side of body i have most trouble) That floored me, cuz i know thats not true. she agreed to do another round of MRIs, after i insisted she listen to my ALL symptoms. thank gawd im gonna be going to an MS clinic soon, cuz i cant handle bad docs anymore! thinkin but you matt, get well soon buddy!

    ReplyDelete
  21. P.S. Im still vit D deficiant even tho i take 2000 IU vit D everyday. Is this a common problem in MS ppl?

    ReplyDelete
  22. Sleekcartim,

    I take a 50,000 iu pill at the beginning of every week. It is time released. I go to an ms clinic. But, 20 mins of sunlight gets you the same amount. Recommended to do this every other day in addition to the pill.

    This amt. puts my Vitamin D in the normal range. Wouldn't take this much, however, unless the doctor gives it to you. I have to have periodic blood work.

    ReplyDelete
  23. 50,000 sounds extreme. shocking that you still only have a normal level after that! Im betting you have other medical problems. I wonder what that does to thicken the blood. would CCSVI fans have a problem with that? I just watched an interesting Youtube vid on VIT D & MS. that doc sez MSers should take high levels of VIT D, but not too much, cuz it's fat soluable, which can be toxic if too much.

    ReplyDelete
  24. sleekcartim,

    I don't have any other medical problems at all. I have had no problems at this level. That is, believe it or not, what you get in a single session of sunlight. I am assured that it's really hard to get too much vitamin D. But, it does tell me that it is possible that the vitamin D deficiency played a part in my MS.

    I am fine here. Whatever works!

    ReplyDelete
  25. I was recently given my MS diagnosis and informed that i am looking at approx $3000 per month for meds (i dont have insurance and now that im diagnosed...doubt ill be able to get any). Does anybody have some useful advice as to how i can get some help with these meds? Able to pay but not at these ridiculous prices.

    Bobby

    ReplyDelete
  26. Bobby,

    Contact the individual company, like the Rebif company. I think it is Serono. Your doctor will know. They have programs that assist you -- either based on lower income or for very high co-pays. You apply, basically, and they tell you what they will do. Each drug has something like this. Have to deal with them directly.

    I have insurance -- never had to do that, but I do know it is there -- at least for one year.

    ReplyDelete
  27. my doctor set me up with the University of S. Florida to participate in a clinical trial for a new drug called Ocrelizumab. Has anyone heard of this or of anyone else who is participating in this study? not sure how i feel about being a lab rat but i am reading some promising things about the drug in Pharm articles and from the MS Foundation.

    ReplyDelete
  28. got a call from my doc today... He wants me to do 50,000 IU VIT D. I always second guess my dumb doc, cuz he's wrong too many times (ugh). He put me on 50K vit D before when i had hyperparathyroidism, which could have KILLED me (dumbass). watch your docs people!

    ReplyDelete
  29. Matt 951 346 6056

    ReplyDelete
  30. Hi Matt
    Thinking of you often I'm praying you will improve and get better after this disastrous relapse. I have gone back and read your blog from the beginning, and by taking it slow I can see how serious lots of your symptoms have been, but also how your body healed from many of the conditions. You have been honest during all what I read and as you said, if anyone can deal with this MS, you can, and you will continue to inspire others, no matter what.
    So I'm hoping your new normal will become good with you. Sorry and sad for what you must be going through.

    I started my MS path when I was in my teens, but I am fortunate that it wasn't as severe as yours. In the end, we have each moment of peace or struggle, but who you are inside, is what really counts. Yah, I know, easy to say but I really do understand how you must be grieving the state you are in right now. Always remember, change always is ever present. So ... I know that heading into remission is in the cards for you.

    Today I was reading about lots of research, brand new, being done and that is really exciting especially for young people like you! Allow yourself to feel depressed for what you are going through, because that too will pass. I know that heart of yours will keep shining through!

    Mare

    ReplyDelete
  31. Mare,

    Have you heard from Matt recently? I'm really worried about him. He hasn't been on the MS IS BS fb site for weeks. I know he was in hospital going through a relapse, but haven't had an update since. I hope he is ok.

    ReplyDelete
  32. Hi, sorry if it my post looked like I was in contact with Matt because I wasn't. My only contact with him would be here on his blog.
    I guess I wanted to send him another message, with the possibility that what he is going through is very serious. I thought this especially because I read all his previous blogs again and honestly when I stopped and thought about all his symptoms from the beginning, from my experience and knowledge, I think the MS has been hitting him hard from the start. I have a friend in my MS group whose history sounds similar to Matt and she seems to have been hit hard and fast, so it made me just want to post something here, so whenever Matt reads it, I don't know, but maybe he will be shown, we take his story and know how devasting MS can be in a short time frame.
    I'm lucky, my time frame of my symptoms has been much longer and much slower and I'm so thankful for that.
    I had the run around from Dr.s and had terrible experiences with many of them. If you can believe it, the Dr. who guessed MS and thought I should have an MRI, was an independent Dr. who worked for my workplace's Insurance Company. Before they would allow me to go on disability, they needed proof that something was wrong. So, I spent a whole day with this Dr. who was to evaluate me and all my symptoms. Smart man, he really looked my story, made a 20 page report (which I have a copy of). After that more problems, with Drs. but because of his report and working for an Insurance Company, a Neuro had to agree to send me for an MRI, which I waited for 8 months to get in.

    Until his report, I know that my family Dr. etc., did not believe me and didn't think what I was experiencing was serious and treated me like it was all in my head!

    Added this info, in case any of you find it interesting as I know, really know, how long the path is for someone to seriously look into your DX. It can be a long road, don't give up because you will come across someone who you feel and know is on your side.

    Mare

    ReplyDelete
  33. This docs not believing patients thing is a violation of their do no harm oath. Think i might mention that to my doc before i dump his ass

    ReplyDelete
  34. Hi Matt. Im new to your page and I was shocked to read the headline that you could barely type. I also experienced my worst relapse on Dec 30, 2012 and as of today I am 90% recovered. Im also a young man in his late 20's trying to stay positive... GOOD LUCK...
    harreola22@gmail.com

    ReplyDelete
  35. Yes, I can not believe how bad it was looking back, I have recovered a lot but I will never be 100 again (most likely). Are you on Facebook?

    ReplyDelete

Translate My Blog