Saturday, January 7, 2012

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Woke up this morning an my head was numb... The back left of my neck, the back left of my head and my left ear. As the night is coming to an end it is slowly spreading down towards my cheek... I can feel that I am touching my skin but it is a very faint sensation as if a dentitst decided to shoot me up with novicane all over my neck, head, and the left side of my face. Also been experiencing a little more pain than usual today most in my right hand's fingertips. One finger in particular has a sever almost itching sensation that comes and goes but mostly just the "I just smashed my finger with a hammer" sensation. My left sciatic nerve is bothering me a bit as well. That's all that's new, vision and everything else is no different than usual.

Symptom Log: 1/7/2012

  • Numbness on left side of head partial face (left)
  • Impaired fine motor skills
  • Occasional spasms in fingers
  • Pain in fingers (right)
  • Occasional itching in one finger (right middle)
  • Gate is not the best but not bad at all.
  • Sciatic pain (left leg)
  • Vision is no different than usual.
  • Cognitive fog is the same
  • Vertigo when I move my head too quickly (Not too bad today)
  • Impaired taste
Current Medications/Supplements
  • Prednisone (20mg)
  • Gabapentin (600mg)
  • Citalopram
  • Lecithin
  • Vitamin C
  • Potassium
  • Vitamin B-12
  • Calcium

14 comments:

  1. I ran out the other day so I have to go to the store:^(

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  2. Hi Matt,
    Watched you on youtube this morning and so glad you post your progress as it is very helpful and you make it feel so personal, it's like talking to you in person.

    Last night on TV I watched a show that was on about NMO, which is almost exactly like MS but a few unique variations. Have you heard of it. I thought of you because when I looked it up, the article mentioned hiccups and you have had those, although I have never heard of that symptom before related to MS.

    If you already know about it, that's fine, but I just wanted to pass that info onto you if you haven't looked it up before. There is a lot of research being done on it right now as a 15 year old was diagnosed with it and her mom is wealthy and she is determined to pump as much money as she can into the research and treatment.

    You are an amazing young man!
    Mare

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  3. The head numbness scares me more than anything, dont really know why, maybe it's cuz it reminds me most of a stroke symptom. really strange to feel this exactly down the middle of your face / forehead, my head actually feels colder on that half too.

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  4. Thanks Mare, I don't think I have heard of it. The hiccups are weird and uncommon but they do happen among MS patients haha!

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  5. Yeah the head numbness I am finding to be rather upsetting, well, maybe it was that and I had a bad day, but I don't like it :^(

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  6. because im dealing with a non MS diagnosis (so far), i have a few questions to anyone who has similiar symptoms, so i can have some peace of mind about my situation. Often my numbness / tingling starts or becomes worse when i start to fall asleep, also is bad when i wake up. how bout you? only half of my foot is constantly quite numb & if you run something along that side, i will jump out my skin & kill you, how bout you? I have various degrees of numbness on most of my body, that i didnt know the extent of till my neuro did a pin prick test all over, how bout you? Is it possible to NOT have eyesight issues, and or walking issues and have MS ...i expect these will be coming to town soon enough, but dont have to dance with them now, altho i did fail a heel 2 toe (w/ eyes closed) walking test. i briely had a very painful shin skin pain, but hurt only to the touch, anyone? anyone? THX!

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  7. I just woke up with left head numbness & more than usual right fingertip pain HMMMM

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  8. Well I have various degrees of numbness as well, sometimes it doesn't seem numb at all until I use a pin to realize I can't feel the finer stuff. At night when I am TIRED it comes around more and sometimes when I wake up if I was restless it is really bad.

    I don't think EVERYONE has vision and walking issues, my numbness and paralyses came before my vision and walking went out.

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  9. im trying to prove it's not a compressed nerve causing all these symptoms like one of my neuros seems to think.
    I dont see how a compressed nerve (which i have had for 15 years) can somehow cause numbness & tingling to happen just as i go to sleep. he also thinks sleep apnea is causing my cognitive issues. sleep study sez i do have it, but dont trust my sleep study experience fully. some symptoms are the same, but some are different. The more i find out by chatting with MS ppl, the more i realize he is wrong. not knowing for sure is causing lotsa axiety, not good for MS. thx to matt & everyone for all ur patients / understanding

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  10. P.S. there are fine common aspects that many of us seem to have which are indicative of this disease. however it mimics other conditions so closely, its madening!

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  11. one key symptom of sleep apnea, fatique. Im not always fatiqued, but am depressed with cognitive issues most of the time. i know im obsessing, but thats how my brain works to solve problems. no doc (except for Dr house) will get in this kinda detail to find out whats going on, but it's all i have, so

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  12. Its not obsessing when your in your position, I would be even worse! If you have an issue that comes and goes consistently than it kind of sounds like an inflammatory issue AKA - MS. Your going to have to keep trying those spinal taps or hope that a new doc will look at your MRI and go "Um... No, that's MS...."

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  13. MY Husband has had ppms for over 25 years all the symptoms you have commented on he has, his condition is a very slow progression, I am always researching for new treatments, having a positive attitude to your condition is a help to keeping you going. Make sure you find something to laugh about and keep in touch with family and friends, maintain your interests where you can and enjoy life as it is to the best of your ability. you can still do what you like to do but you may have to approach it in a different way. Keep positive, medical breakthroughs happen on a daily basis, never give up hope.

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