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About Me

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My name is Matt and I am 22 years old living with Multiple Sclerosis in SoCal. Most people fins me via my blog at http://www.mattsms.com and I work to connect people with MS from all over the world of different ages, genders, and walks of life.

Thursday, January 5, 2012

How to Get Tested For Multiple Sclerosis (MS)

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There are only a few reasons you are looking at this article... Most likely you or someone you love is experiencing some odd symptoms whether they are settle or severe, whether they have been persisting for years or weeks. What could it be? You want to know so bad... You need to know. After doing some research you were led to think that maybe what you have is Multiple Sclerosis or MS as it's called for short. So what is the next step? I'll explain what you need to do but more importantly is why you need to do this.

Most people experience a long diagnosis process when it comes to Multiple Sclerosis. This can be because they are avoiding the tests do to their fear of the answer they may receive or because of a doctor who is simply dragging their feat... Either way I can tell you this, you want an answer as soon as possible because the answer is not going to effect your symptoms, only the treatment you can receive will be effected. If you are afraid of the answer think of it like this, the sooner you get an answer, the sooner you can identify the source of your problem and pursue a treatment. If you put it off you symptoms may do permanent damage or cause you more pain for a longer period of time at the least. Maybe you don't even have MS, maybe once you get your answer it will lead to ending your symptoms all together!

Is your doctor dragging his or her feet? Well then demand that you get these test done, it's your health and you have a right to get tested if for nothing else but the process of elimination in your diagnostic journey. It doesn't matter what the doctor thinks because a test is like an answer key, it will give you the confirmation you need, all a doctor can provide you without a test is an opinion. I know this is hard to believe but doctors are people and make mistakes just the same as anyone else and sometimes they can get a little stubborn with their answer especially when you start demanding to be tested for something they don't think you have. When this happens just stick to your guns and demand that test!

Anyways there are two tests you need to get done to confirm a Multiple Sclerosis diagnosis. An MRI and a Spinal Tap (Lumbar Puncture). Don't let this scare you! It's nothing, really, you'll be just fine! When your done you get to say you were inside an awesome machine, talk crap about how most TV shows about health have it all wrong, and then brag about how you had a spinal tap! It's fun!

MRI

This is what you need to do first, get an MRI of your brain. An MRI can get you an official diagnosis if it looks convincing enough but some doctors may give you a "Probable Multiple Sclerosis" diagnosis. This only means your doctor is being thorough and probably wants you to get a Spinal Tap to confirm. If not push it because even though your MRI may look like MS it could end up being something different that your doctor mistook for MS, it happens! Your MRI might also not show much at all! If this is the case then you want a spinal MRI next, spinal lesions are not as typical (I am avoiding the word common) but lots of people have them so you should push for that if your MRI of your brain looks somewhat normal despite the fact that your doctor is convinced you have MS.

Spinal Tap (Lumbar Puncture)

This is what most people fear. With an MRI you may have some claustrophobia issues to deal with at the worst which they can give you medication to relax for. With a Spinal Tap (Lumbar Puncture or LP for short) you have a large needle involved which they poke into your back to retrieve spinal fluid from your spinal column. This freaks people out and there are rumors that it is the most painful procedure in the entire universe!!!! It's not... It's really no big deal at all. It just takes a few minutes and the local anesthetics are the only pokes you really feel. After that you lean over and they poke you, drain some fluid out for a few seconds and... And that's it. Easy.

Now here is some important information to keep in mind regarding your spinal tap. A positive for MS is a positive, this means you have Multiple Sclerosis for sure. A negative on the other hand is inconclusive. You could have MS but at the time of the test there was no Myelin protein floating around in your spinal fluid to get you a positive. So "they" say to do your spinal tap when you are experiencing a lot of symptoms because you have more of a chance of finding the Myelin protein in your fluids that broke away from your nerves causing your symptoms in the first place. Some people have to have several spinal taps over a period of time before they get a positive test result but in my case I got it on the first try, yay...

Secondly, some people experiencing a headache after the procedure because when you remove spinal fluid you reduce the pressure in your skull around your brain. The fluids replenish pretty quickly in most cases so your headache should go away just fine on it's own if you get it at all. If it last for a few days with a good kick to it then you might want to go back in for what's called a "blood patch" when they inject some of your blood into your spine to balance the pressure back out. You can do this or just ride it out like me!

Anyways, I just want to say this, do not be afraid of a diagnosis. You are battling something that is causing you symptoms right now, isn't it better to know what it is that you are battling? You have to fight this enemy either way so you might as well get a good look at his face and have a better idea of what weapon is best to beat him! Don't put it off any longer, go get these test done! At the least you are just crossing one more thing off the list!

62 Comments:

  1. I went through the tests last fall. I had one large lesion and several small white spots on my MRI. My symptoms started with tingling and burning on my face and scalp. I also had the spinal tap and nerve tests on my hands, feet and eyes. My spinal tap came back negative. My doctor seamed certain that I had MS after seeing my MRI. He now says that I may have just a mono lesion and may not ever develop any other spots. The large lesion that I have is consistent with MS. It has the finger type feelers extending from the lesion. I am not afraid of the diagnoses of MS. In some ways living with the possibility of MS makes it worse. I am scheduled for another MRI in March of this to check for further lesions. I still have the nerve pain in my face and scalp.

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  2. Most people don't like fighting something they can not see. When you had your spinal tap were you experiencing a lot of symptoms or had they calmed down at the time?

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  3. This is where I am stuck. No lesions. Lumbar within normal limits. They still tell me I have MS. SO CONFUSED!!! I am diagnostically challenged.

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  4. How many LP's have you had? Have you had a spinal MRI yet?

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  5. I had one LP done NOT during an exacerbation, and recently had an MRI of the spine but haven't heard any results yet. This is all so frustrating! It has been three years.

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  6. I was having symptoms when I had the spinal tap. I guess it's just a way and see game. Hope all goes well for you and 2012 is your best year ever. Take care.

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  7. it is very possible to have MS with no lesions showing...

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  8. Well, that is a bummer. I don't think I will be able to get on any DMD until there is proof. So much for early treatment. It really is hard to accept at this point.

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  9. Yeah even if you do have symptoms while you get your spinal tap it's not a for sure kind of thing, just heard it betters you chances. "wait and see", man that should be the MS diagnosis motto, I remember saying that all the time. I still say it just not as much.

    And yes, it is possible to show no lesions and have MS, it's just not as common. Again, the lesion could be in your spinal cord instead of your brain, something to look into!

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  10. Did a slight update to the MRI section haha

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  11. Yup, it is possible for them to not show up on MRI (especially if contrast isn't used and if a lower power machine is used). It's amazing technology, but not perfect.
    Also, if tests are taking a long time, it's not necessarily because the patient is putting it off or the doctor is dragging their feet, sometimes its just how the system works and nothing to really be done about it (depending on which country you are in). I'm starting my 7th month now waiting for my spinal MRI appointment, just how it goes with publicly funded health care since everything is prioritized (many more conditions requiring MRIs for confirmation that pose a much higher immediate risk). Also helpful to get bloodwork done, check vitamin D levels (frequently low in MS patients), check for things like lyme disease, etc.

    The diagnostic criteria used for MS changed in 2010, here's a link with the updated criteria http://onlinelibrary.wiley.com/doi/10.1002/ana.22366/full

    Really liking this new series of posts your doing, btw. Keep it up :)

    - Hannah (won't let me log in to comment for some reason)

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  12. I actually just received this article from someone else, man it's long! Trying to read and understand it all,going to look for a skimmed down version haha.

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  13. looking for answers. I had vertigo with spinning ceiling, headaches and visual disturbances last April, having gone on for a couple of months. Also had severe lkeg spasms for many months( but this I never bothered with, kept thinking I should have my calcium checked)Went to eyedoctor due to the visual diaturbance and room spinning.
    He sendt me for stat MRI of brain, called me at home, I had cerebral aneurism. ( MRI also shoved multiple leisons suggestive of MS. and an old silent stroke)
    My eye doctor found me a neurologist who is also a interventional neurologist. From here it was to prioritize, and aneurism first. To make the story short, I had cerebral angiogram, then endovascular embolization with stent to repair the aneurism.
    I have been feeling very sick for months, almost a year now. Verry tired, have forced my self to go to work,
    numbness in all 4 extremeties, pins and needles. unsteady gait, sometimes flushes of numbness, having problems with grasping( I do have a 10 year old problem with cervical herniated disc, but it has been stable for many years,) The worst feeling is that fatigue, and a constant feeling of vibration or buzzing all over body. I have told doctors, but no answer. Had slight elevated ANA, saw Rhematologist, had Vitamin D insuficiancy. Any how my neurologist have repeated MRI 2 times now, and no sign of new leisons. He said I need a spinal tap to confirm MS. We are holding out on that because I need to be Plavix and ASA ( to prevent bloodcloths since the aneurism repair) Tried to take me off twice, I had TIA and recently 4 weeks ago ended up with a small CVA.No big debilitatin neurologic effects, though I have taken medical leave from work, which is now running out. I have no more sick days or medical leave days.
    I have to go back to work but I am afraid due to my vertigo, I am a nurse and the work is physically and mentally draining for 12 hours. I have to hold on to railing i hall way. I feel like there is a tight rubberband around my legs. I cry all the time, I am afraid of hemmorhage from the aneurism site, new CVA and need to at least roole out MS. Suggestions?

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  14. Wow, that sounds overwhelming so I'm sorry. I hope your on some kind of disability at the moment? Secondly you already answered your question with what I would have recommend. Get the spinal tap. I know you have to wait but just try to be patient. In the meantime can they give you steroids? You are obviously having some kind of neurological issue IDK if they could necessarily hurt, maybe ask about them? Then get the spinal tap when you can and see what the results say because since you have had several other issues you definitely need to make sure you have a proper diagnosis before you start treatment in case it's something else that needs a different approach than MS would.

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  15. DONT READ THIS IF UR VERY ANXIOUS / SQUEEMISH ABOUT L.P. Matt i get why your tring to sugar coat this, but not all of us will appreciate it. I had a terrible experience with both LPs, it wasnt fun. I had a good idea of what would happen. My 1st experience was with my neuro who was suppose to be experienced. she didnt numb me up enough, i felt the severe pain & intensly gross feeling of long needle going into my back. i yelled & demanded she stop. she said "where does it hurt?" all i could say in my freaked out state was "inside". she pulled out needle, i went home still feeling those feelings for hours. My 2nd try was with xray guided equipment & what i found out half way through to be an inexperienced doc (apparently a supervisor wasnt there, took long time to find another scrubbed up doc, all the whie i was needled). The head nurse who prepped me (for 2nd time)was angry that my neuro screwed up, she insisted i didnt do anything wrong, shes said "we do this the right way here" also said: you have the right as a patient (and should always) to ask for an anestiologist (sp) to administer numbing shots, monitor pain etc... well this new doc had a needle in my back for over an hour. while i appreciated him taking his time (didnt hurt as much going slow) it took it's toll in ther ways. I felt sick to my stomach half way thru, this caused them to panic, worry bout a heeving patient with long thick needle in back (not good). they covered me with wet towels, felt better. The extreme uncomfortable, exhausting, feeling of being in one position for an hour with threat of extreme consequences for moving, was one of the worst experiences of my life. To make it worse, LP came back NEG, which means i have to do it again in near future. think i will need to be drugged for that.

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  16. Wow, well to be honest I have never heard of anyone having such a bad experience. With ANY kind of procedure you are going to have a percentage of people who handle it differently or have bad doctors, etc.

    I NEVER try to sugarcoat ANYTHING, I HATE that, I am seriously being honestly with my experience, it was quick, easy, and as far pain goes if I had to rate it on a scale of 1-10 (10 being the worst) I would give it a 6 and that is being generous to the pain.

    But you see, I had an experienced neuro doing this whereas some people get students or doctors who have not really done it much. SO it ALL depends my friend.

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  17. wasnt kidding when i said testing hell. Im desperate for a diagnosis for so many reasons (medical, AND disability case). Im tired of my (ignorant) PCP frustrations at my insistance i have MS. I proved him wrong with my hyperparathyroidism diagnosis, Im doing it again with MS. honestly equally frustrating is our (you & me) EXACT SAME hellish doc / healthcare experiences than i am with MS! sorry for chatting too much, thought it might help us / someone. im bored & passionate like u.

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  18. Haha yeah I just set myself up with a new doctor at Loma Linda so I am SO hoping for a new experience..... It's so old.....

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  19. Im looking at your? MRI above... I wonder what MS lesions are suppose to look like? 3 lesions showed up on mine, neuro sez "white matter changes" (neuro said "look it up if you want to worry"), never could find out exactly what all that ment. neuro sez "doesnt seem like MS",(said something about no brain shrinkage) "will redo after condition gets worse". any of that make any sense to you? just failed all the cerebellum function tests i found on YT (UH OH!)

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  20. Well FIRST of all brain lesions come in all different shapes and siozes and quanities. Another friend of mine with MS said her MRI looks like a Christmas tree, lots of MALL white dots everywhere unline my few medium sized ones.

    SECONDLY, brain shrinkage? That happens after YEARS and YEARS of MS if I am correct, I know I DON'T have that issue yet!

    Thirdly - GET A NEW NEURO, from everything you have told me, your is an idiot. Neuros tend to think they are one step down from God and get lazy because they can "just tell what's wrong with you with a quick glance". Get a new one, younger the better because they are less likely to be set in their way and to be following the old MS info from 30 years ago.

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  21. that neuro is young (32 i think). As you know, there arnt many neuros around (even here). Im lucky in that i live in one of the best places in the world (MASS) for quality of medicine & theres isnt any better state for ill ppl (for anyone who lives in a state without health care programs to help). I strongly suggest you move here. that being said, i have to say i think it's better for any MS person to get with a neuro that SPECIALIZES in MS. theres a group of MS docs near me i found recently, wiil be going there soon.

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  22. Haha I have plans to move elsewhere one day but good, hope you find a specialist!

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  23. The more I read about the medical system in the US, the more glad I am that I'm an Australian living in Australia. I hope Obama is re-elected because I fear for my friends in the USA if the Republicans take over again.

    Australia's Medicare system isn't perfect, but it's universal and it's there for everyone. Good luck to all who are working through the health system wherever they live. It's not easy, and it all seems to take a long time to get what you need.

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  24. Yeah it's crap here because it's all about making money not helping people. If the Republicans regain power and overthrow Obama Care I will no longer have health insurance because Obama care let's me stay on my Dad's insurance until I am 26, without it I think it ended at 20 and I am 21 so I would be without a paddle, maybe even without a boat!

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  25. Okay I have white spots scattered though out my brain my doctor said it could be the start of ms so he sent me in for a ver and an mri on my spine. But there were no spots on my spine. Can I still have ms with having no spots on my spine. I am suppose to go in for a lp and a emg in the next few weeks

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  26. It doesn't always hit the spine, when it does it can be bad.... That is what happened to me.... Get the LP though for sure! Even if it's only in your brain that should be enough for DX so get that LP ASAP

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  27. There are ppl with NO lessions on the brain who also have a MS DX. Leading them to believe it IS a vasular issue NOT primarily an auto immune / neurological one. about 90% of ppl with MS have a blockage / restriction in the neck veins that allow blood drain from brain. liberation teatment (CCSVI) allows the vast amount of MS ppl relief of their symptoms at least for short time (sometimes veins close up again).

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  28. I'm 13 years old and have been in riley childrens hospital 3 times already this year, they said I had A.D.E.M ( acute disseminated encephalomyelitis) and that it would only happen once.Well when I was in the third time the doctors said that they took me of the steroids to quick so they put me back on them but for a longer time period. I've been off them for about 3 weeks and I'm beginning to show signs of it again. My symptoms were and are back and neck pain, sensitive scalp, weakness in my legs, trouble walking, headaches, and the newest pain and tingling in my arms. Do you think its MS?

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  29. I think I am not qualified to have an opinion. But at such a young age I think you need to keep going into the doctors till you get an answer. Have you seen a neurologist? Sorry for late reply. How is your vision?

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  30. My neurologist didn't make me get an LP, he considers them a thing of the past. He said he would do one if it would make me feel better about the diagnosis and treatment, but he felt like we had enough with my symptoms and MRI results. I sure wasn't going to argue with treatment!
    Oh and thanks for your blog Matt, knowing I'm not alone means the world some days.
    Amber in KS

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  31. It's all about preference haha and yes, you are not alone, trust me!

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  32. I been seeing my Neuro and I just feel she's dragging her feet. I have had signs and symptoms for quite some time and what she does is sends me for blood work like Vit D which is VERY LOW and now sending me to see mt eye dr to see if I have fluid behind me eye's since I been complaining of headaches. She's been seeing me every 3 months, for last 9 months but I just feel she's dragging it along,and in my eye's if something is there like MS it's just going to get worse the longer we wait to do an MRI or Spinal tab. I have asked her about an MRI and she keeps saying well lets do this or that first. Getting SICK OF IT! am I wrong to say that or have patience's?

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  33. I am sick of doctors, they just drag their feet. "Diagnose and Audios" as they say, that's us MS patients. Just have to be aggressive. Most the neuros I have seen hate me because I won't sit on the back burner, I call and call and call.... I wish you luck, I do, it's frustrating...

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  34. This is an incredibly helpful beginning. I SO appreciate this. I will check in after we get testing done. Your positive perspective and approach to MS are encouraging. I am saying a prayer for you. Be strongER my friend. Talk to you soon. MLE

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  35. thank you, glad to be of help, wishing u luck!

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  36. Firstly let me thank you for writing such a positive article . I have been ' ill ' for 8 years with mainly all over pain , especially in the neck , fatigue , headaches , face pain , numb tongue and strange patches on my head ... with my hair folicles hurting !
    I have seen a neurologist 4 times and each time he has sent me away and after a physical test has concluded nothing is wrong . Now my vision is affected and I can't see properly . I have been through periods of balance problems and have broken my finger due to this . I have fallen down the stairs , have bruises from walking into doorways and have lost my strength in my arms .
    I remember asking the doctor who first diagnosed me with ' Fibromyalgia ' how am I going to live with this and he said you will find coping mechanisims and he was right .
    I have during my relapses worked part time but when I am having a bad time I just close the door to the world and paitently wait . I don't know how long each period of illness will be and the headaches are increasing . Finally my doctor sent me to Ear Nose and Throat sepecialist who after pushing a pipe up my nose and saying that everything was ok and there was no reason for the face pain has sent me for a CT brain /face / neck scan . The question i really want asked is will a CT scan show any legions ? or is a CT scan used to determine whether one has Giant Cell Artritis ? Hoping someone out there can answer my question.

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  37. Wow... Hmmm.... I think you need an MRI because a CT will not show much.... Demand one....

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  38. Good information Matt, however I do disagree with Obama Care. The only good item out of the plan is that you are covered to the age of 26. Other than that, we all may be waiting for 7 months for an appointment.

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  39. Haha well, I don't talk about politics here, I will just leave it at that :p

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  40. I'm suffering daily..I have m.s the lesion that is causing me all my pain troubles..is at my c3 c4 area cervical spine..my arms go numb burning tingling..theb my arms get stiff really stiff can move them.2 seconds later my fingers will move by themselves..then I get this rumbling feeling in my chest an neck..I'm loosin my mind..this us every damn day 2 to 3 tymes..been on tysabri for 2 months..its not help..Neuro is,a specialist but he seems lost .

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  41. well... Tysabri doesnt improve anything, just keeps it from getting worse... But man... Maybe look into alternative treatments? Diet, exercise, massage therapy, supplements, etc?

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  42. I REALLY DONT KNOW WHAT TO DO. TWO YEARS AGO WOKE UP WITH VERTIGO THAT PUT ME IN BED FOR 4 WKS. THE VERTIGO NOW COMES ON AND CAN LAST FOR WEEKS AT A TIME. FATIGUE, BLADDER ISSUES, SEXUAL NUMBNESS, HEADACHES AND BACK OF THE HEAD AND NECK PAIN. BRAIN MRI WITHOUT CONTRAST DONE 4MTHS AFTER THIS STARTED AS THOUGHT I HAD A ACOUSTIC NEUROMA. DOCTOR HAS NO MENTIONED FURTHER MRI OR TESTING. CANT COPE

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  43. I am sorry, I hear it all the time, not having an answer has to be the worst. LIMBO. But I know its hard, just try to be patient and your answer will come, just cross what ever you can off the list! Push for all the test you can and just say that you want to cross things off the list!

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  44. Hi Matt and everyone, I am glad I found this page. Too bad there are so many of us affected. I just had my first LP done today and my back is hurting a little. Luckily, I never had the headache I fell asleep for a couple of hours and that might of helped. The test itself went smooth, of course, my doctor made a joke about still being able to do one. He is 66 years old and has a strange crass bed side manner that I appreciate. I was diagnosed two months ago with RRMS I also have Restless Leg Syndrome but the Requip is a lifesaver or leg saver. When I first starting having symptoms I went to the Mayoclinc website and found it to be accurate as far as leading me in the right direction. I've had all the tests and the LP was my last one other than the yearly MRIs. I just wanted to say thanks for the page and suggest that everyone find a doctor that they trust. My original MD before my neuro did nothing and I found an MD that cared about my whole being and she referred me to my neuro and some really good doctors/people.

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  45. Yes, nice to meet you though it is a shame haha. Glad your LP went well, the headache sucks!

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  46. My doctor has been ridiculously vague with me and my symptoms. I started out around November 2012 with some minor leg tremors that stuck around for a few weeks and then disappeared. They came back around New Years 2013 and persisted through the beginning of the year. I finally saw a doctor when I had this odd sensation that every nerve in my body was twitching and moving despite my standing still. Doctor did a bunch of physical tests, took some blood, and told me that based on the physical exam I could have something as minor as a Thyroid disorder (this proved positive with a blood test) or something as serious as MS. As it stands, I'm on thyroid medication and my doc wants me to "let the medicine work in my system" before I undergo any other examinations. My anxiety levels are at about a 10 - the possibility of MS is all I can think about. It's literally ruining my life. I have no idea what to do. I'm a 23 y/o male, btw and I teach full time - I do not have time for this sort of stress in my life.

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  47. Have you seen a neurologist? Ask for a referral and be the boss, take charge, it's YOUR health and your dock obviously has no experience here if he is mixing this up with a thyroid issue.....

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  48. Holy headache Batman!!! Thought I'd stop back for an update it is day 5 and the headache is finally going away. Why is it that when someone tells you to be still all you want to do is get up?

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  49. "Don't Push The Red Button" lol! Glad it is fading though!

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  50. i need to get a test for ms but can not have a mri as i have a pace marker so what can they do for me now.

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  51. I would imagine an LP (Lumbar Puncture, AKA, Spinal tap)

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  52. Wish I had demanded a MRI scan , I had suffered from headaches for years plus i had terrible fatigue , doctors kept dragging their feet , then i started getting bouts of numbness on the R/H side of my face , first time they said it was Bell's palsy , other times they sat looking at their computer monitor giving no real answers .

    Then I went numb down all the R/H side of my body , this they explained was due to a nerve trapped in my neck , said the same the other times it happened ! then i started getting unsteady on my feet , dizzy spells , weak legs , right knee giving way ...NO REAL ANSWERS :-/

    it actually got to the stage were i stopped going to the doctors , then this one time i had to go because i prescribed migraine tablets , i had to go for a revue , I saw a new young doctor at the practice and when i spoke to her everything come flooding out of me about what i have been experiencing , she booked ex rays for my neck and an appointment for the Neuro he set up the MRI and said he wouldn't be seeing me again unless something showed up on the scan , two weeks latter got a letter saying an appointment had been set to see him again , so worried i phoned my GP to ask for the results of my scan , they told me i had to make an appointment

    New GP not there anymore so had to see one of the regular ones , went to them , said they did not have the results and to phone in the evening , i did so and the person on the other end said still no results , so i got off the phone and rang the Neuro's PA she faxed them strait through to my GP , five minutes latter got a phone call to go for a chat , the GP told me they had found a mass on my brain "said nothing about MS" but it was not cancer huh!

    When it came to seeing my Neuro , me thinking Ive probably got a small tumor , when i walked into his office a scan was on his monitor and i thought , I hope to god its not mine , as it had white patches all over it , i asked if they were tumors , he replied , no they are whats called brain lesions , you have MS .

    Sorry about being long winded about it , but this is the kind of crap i had to go through to eventually get diagnosed , so if anybody is experiencing symptoms and you feel that no one is listening please please DEMAND THE TESTS ! ......i wish i had.....

    Mal

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  53. Yeah, a few doctors said a pinched nerve in my neck at first as well. I say demand an MRI, it's either you or your insurance paying for it so what do they care? At the worst, you can cross something off the list, that is how diagnostics works isn't it? Crossing things off the list?

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  54. i have not been to the doctor yet but i have been having pains all over my body and headaches for the past 2 years and also recently have been very fatigued even though i get a good nite sleep i seem to sleeptil late and still feel tired throughout the day does this sound like ms?

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  55. I can't say if that sounds like MS, it sounds like it could be many things, maybe not classic presenting symptoms of MS but everyone is a tad different you know? You need to see a neurologist and maybe have an MRI if he/she thinks it is necessary.

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  56. Hi. I had my ANA levels tested and an MRI done a bit over a year ago because of MS-like symptoms I'd been experiencing off and on for some time (vertigo, fatigue, inner nostril lesion, confusion). The MRI showed nothing out of the ordinary and the bloodwork was fine. I was so sure that I have MS that I thought perhaps they'd mixed up my files with someone else's. However, my symptoms all seemed to go away until a couple of weeks ago. Last week, I had several days straight of blurred vision and had to squint to look at my computer screen. Over the weekend, I couldn't sleep at night due to muscle spasms...and when I have been able to sleep, I wake up with my muscles all tensed up. However, I will admit that I am a bit of a drinker. I enjoy a few beers on most nights and/or a galss of wine. I'm wondering if I should go BACK to see my doctor regarding the MS or if perhaps all of my symptoms are alcohol-related. Obviously I can do a simple experiment and stop drinking for awhile, see what happens with the symptoms, but they come and go anyway and present differently the next time around, so I'm not sure that would provide a clear answer. Your thoughts? Oh - and thank you for this forum. It's very enlightening! :)

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  57. Haha WELL, simple actually, dont drink for 2 weeks and see what happens OR just see your doctor haha...

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  58. Sounds like u are very even keeled, so to speak. I have had every test,only showed up was white matter in brain, lp, thoracic spine neg etc. Repeat MRI in brain, say white matter been there for a longtime most probably, chronic alcohol ,or cocaine abuse, rehab for both in 97. Still 3months symptoms consistent with ms most have gone away though.found heart chamber problem last week. Cardiac MRI next week. Idk at 52 after pro tennis tour and triathlete, injuries seemed to have slowed this old guy down lol another MRI brain 4months, had two brain angios also. I feel like a radiated Xmas tree lol.

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  59. Haha maaaaaybe, maybe, you need a new neurologist??

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  60. Ive been trying for about 7 months to get an MRI. i have had head aches, tender spots on my head, just little patches of numb (pins and needle) spots on my hands and feet, i see spots and flashing lights, im off balance alot and i just dont feel normal. And the doctors always say, those symptoms dont sound like MS? which is what i fear i have. Idk what to do, they all blow it off as anxiety!

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  61. Well you would think they would do an MRI if they suspect MS or not because that all sounds neurological... I would just DEMAND one if only to rule some things out you know?

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