The Answer is "yes", MS does seem to agree that today was a bad day. Waking up early after hardly any sleep, stuck in traffic, everything going wrong, it was one of those "catch every red light" kind of days and the stress was building... I reacted pretty quickly to the stress, well, my MS did is what I mean. My vision started getting worse which is not good when you have a bunch of out of town driving to do. I started experiencing pain and heat flashes, at least I think that's what they were. I would be cold one second then hot the next and every time I felt like I was overheating I had a poking, scratching, burning sensation rush over my skin. My balance feels off, well, pretty much everything feels off. I'm just exhausted and I need some decent rest... I need to dumb some of this stress that has been building for the last few months. Sucks, I don't know what to do, before I was diagnosed with "being single" my significant other and I could leave town for the weekend, go to Disneyland, etc, and that helped a lot but now it seems like no matter what I do I can't leave my stress behind, it just follows me. You would think as good as I am at forgetting thing that wouldn't be an issue but life is not without a sense of irony is it?
Monday, November 28, 2011
Sunday, November 27, 2011
12:03 AM 13 comments
The holidays are here and that means any time you go out and about you are sure to see some cute little couple holding hands and keeping close together to keep warm. So for us singles out there that means one thing: loneliness. Yeah, yeah, I know, I complain about it a lot but I can't help it. As a result of my loneliness I signed up for Zoosk, that online dating site, well, it was kind of an accident. Let's just say you should always be sure that your credit card information is not saved anywhere online because all it takes is one click! Anyways, Zoosk sucks. It's a joke. It's a waste of time. 95% of the people signed up don't actually have a subscription so you can't talk to anyone! This makes the loneliness even more frustrating! You find someone really interesting and you can't even talk to them. I would never, ever, ever recommend Zoosk to any of my friends!
Wednesday, November 23, 2011
11:31 AM 5 comments
Tomorrow is thanksgiving for those of us who celebrate it and I was kind of worried I would still be in really bad shape. But I am happy to inform that I am doing better! I still am about 80% but well enough to get around and not be miserable, yay! I feel like I am over my cold but the sniffles still linger of course which brings about the annoying coughs as well... I won't complain though, after what I just went through I am happy to be where I am now. Best part is I can type at a decent pace again! The laptop keys still frustrate me but I have an external keyboard with a huge amount of feedback in the keys so all is well. I started working on my novel again last night and despite some extremely frustrating formatting issues I would say it felt pretty good. I really want to finish this sucker and start working on one of the new projects I am thinking up.
Saturday, November 19, 2011
10:32 PM 5 comments
Well I have not been blogging for a couple of days and that is for good reason... I got so sick! Granted it was just a cold but it hit me hard and that is probably because the steroids wiped out my immune system. So here's a bit of irony for you, I was having a flareup so I had the steroids to help clear my symptoms, as a result, my immune system was compromised and I got sick. Getting sick stressed my body out causing my symptoms to flare up again... So now I am worse than when I began! Great! Just my luck! I wasted all this time and missed all this class for nothing! This has been a horrible week for me...
Friday, November 11, 2011
11:56 PM 11 comments
Well this is going to be way short! I am done with my IV steroid treatment and I will not be doing any kind of oral taper. I don't think I need it, I have a little Prednisone left that I could take if I wanted to just get rid of it but I don't think it is worth it haha so I should be fine without any kind of taper. Feeling the effects of the steroids starting to kick in so I think by Tuesday I will be ready to go back to class so yeah looking forward to that! Also getting my taste back which is always nice to have! Have not noticed too much change in my hands yet but I mean it takes time for all this stuff to kick in so we will see as the days go by how it all kicks in. I am pretty sure it will all clear up pretty quickly!
12:00 AM 4 comments
OK two days of steroids are done! Just one more day to go, I hope this whole 3 day gig is enough because usually I do 5 but for what ever reason this stupid neuro likes to go with 3 days not the typical 5 but what ever, better than nothing! i have had a smooth but odd experience this time around though... Usually the metallic taste is much stronger on my tongue from the Solu-Medrol but I could hardly taste it... Not complaining. What's really weird though is usually my veins are really easy to get but for what ever reason both days they have had trouble finding them... Today I was poked on top of my forearm! I have been poked in a lot of weird spots but never there... Must not have been drinking enough water or something...
Tuesday, November 8, 2011
9:21 PM 5 comments
Well I finally called the infusion center and set up an appointment; 3 days of Solu-medrol, 1,000mg a day, 1 hour a day. Yay steroids! I am actually looking forward to it for a couple reasons. The first and obvious reason is I want to get better! Since I am seeing some improvement with just the oral Prednisone I have been taking the the IV steroids should clear this all up in no time. Secondly I just want to get out of the house even if that means going to Kaiser to get my arm stabbed with an IV! Sad I know, I am so bored that I am looking forward to going to the hospital... Maybe I just want to be around people? It has been a lonely couple of days... Haha...
Monday, November 7, 2011
6:13 PM 4 comments
Maybe I was just trying to make myself believe that I was doing better today and maybe I started to actually believe it but I'm not so sure... The other day I noticed that I had also lost my sense of taste. Fun. My vision has been crossing a bit as well but so far I've been able to control it. My inability to walk seems to be more of a result of the lack of ordination in my legs than the result of poor balance though my balance is still not that great. I am also noticing some coordination issue with my arms and of course my fingers... So I'm pretty useless right now and I have been going crazy for the last few days as a result of boredom. In fact, I finished reading two novels already! I've been doing nothing but sleeping, reading, and listening to music.
Wednesday, November 2, 2011
4:00 PM 12 comments
Well I cannot deny it now, I am having a flair up. Not the worst I have had but it certainly sucks. First of all, I did not wake up until about noon today... I do hate that I've been sleeping in later and later lately but I do have to admit I have not been feeling as crappy when I wake up. Luckily I do not have too much of a life going on right now so I can afford to just let things happen as they happen but I did miss class yesterday and I don't see myself going tomorrow... How would this work if I had a job? If I had more than just one class? I have been falling further and further away from the positive light I once was illuminated by and now dealing with this flareup is simply killing what little hope I had stored up before. I can't take this anymore.
Tuesday, November 1, 2011
1:42 PM 4 comments
I don't know what happened but I have been falling apart in the last few days... It all started after I stayed out a bit lateer than usual the other night. It's not like I was doing anything crazy, I went to dinner with some friends and then we hung out for awhile sitting on the couch talking. I got home just a couple hours later than I have been going to bed lately. So what the heck? Maybe it's just a coincidence or maybe not... I don't know but either way the fact of the matter is, I have not been feeling well.