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About Me

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My name is Matt and I am 22 years old living with Multiple Sclerosis in SoCal. Most people fins me via my blog at http://www.mattsms.com and I work to connect people with MS from all over the world of different ages, genders, and walks of life.

Thursday, June 30, 2011

Progress Update: Autoject Was Acting Weird Today

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This morning I had an odd experience with my autoject. Has this ever happened to you? My daily injection routine started out like any other day, heated the injection site for 5 minutes and sterilized with alcohol. Then I inserted my needle into the autoject, adjusted the depth, removed the cap, pressed the button, felt the slight prick of the needle and then.... And then not much happened... Usually at this point I can hear the click, click, click, of the autoject administering my medication but today it was more like "click.............click.............click".  I am used to everything going as planned when it comes to my injections, I have never had an issue before, so when something was going different I didn't exactly realize something was going wrong, I just knew something was slightly different. I looked down at the Autojects window and still no red indicator... Was the spring broken?

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Wednesday, June 29, 2011

Progress Update: Wow, I think I got It

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This is going to be a rather short posting in comparison to yesterday (haha) but yeah, I think I figured out why I have been feeling nauseous and achy lately. I thought that I had checked all my medication for possible side effects similar to mine but it was brought to my attention by my mom that I had forgot one medication. Minocycline: the medication they prescribed me to help get my acne in control now that I am off the oral steroids. Made sense, it is the only new medication I started taking recently so I hit the internet in search of an answer which came after just one click to drugs.com.

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Tuesday, June 28, 2011

Progress Update: Fontana - Still No Hope Apparently

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So today I had my latest neurology appointment in Fontana in hopes of seeing a new Kaiser neurologist who was willing to help me. I left feeling rather disappointed despite the fact that I didn't have my hopes up THAT high to begin with but I guess a fall is a fall. This doctor was no different than any other doctor I have seen so far... His final evaluation? My symptoms are all more then likely permanent and no treatment is going to make the symptoms subside. I basically need to come to terms with my disease and accept that this is my life and that I have to live with these symptoms.

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Monday, June 27, 2011

Progress Update: Nausea, Tender Skin, and Still Aching

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I really don't know what's going on... I have tried doing a bit of research with almost no luck. I am still aching from head to toe and my skin is still really tender to the touch. It's like a combination of flu-like body aches and growing pains plus I have been really nautilus for that last few days as well! it's just miserable! It's so hard to get anything done because I just feel disgusting which is why I have not been on top of my blog... I have kind of just been laying around all day lately... By the way, for anyone dealing with nausea, peppermint helps really well, I don't have the real stuff, but it seems that even peppermint gum helps!
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Thursday, June 23, 2011

Help Matt Raise Money to Get LDN!

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Hey everyone! So as you know I have not been having much luck with Kaiser and getting proper treatment so I have been seeking a doctor who is willing to prescribe LDN to me, something that many people have very good luck with BUT do to the fact that its so cheap and works wonders most doctors won't prescribe it and pharmaceutical companies won't support it... However, with the help of a really good friend of mine who is sometimes called "The LDN Queen" I found a Doctor in Palm Springs who is an LDN advocate and sounds really good! Without insurance he is actually pretty affordable to see especially compared to some of the other doctors I have called!
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Wednesday, June 22, 2011

Progress Update: Next Doctor in Line Please

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So I have to admit, I have a lot of anger built up in me right now... I'm so frustrated with the way that our medical system works and I'm so frustrated with dealing with Kaiser. I hate feeling like I am at the same intellectual level as the doctors I am seeing. They may have a little bit more textbook knowledge but when it comes to common sense or thinking outside the box I honestly feel like I am more competent than most these doctors at Kaiser... It should not be that way, that thought, that feeling, should never cross a patient's mind...
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Tuesday, June 21, 2011

Progress Update: Pain, School, and Work

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Yeah, I know, I need to work out... That or I need to find a model for these pictures already! Actually, I'm currently looking for one on one of the model forums I'm part of ha ha but anyways!

The pain has been on and off... I don't get it... The day before yesterday I didn't even want to move and yesterday I felt fine! Today once again my heels hurt, my fingers hurt, my chest hurts, and worst of all, my shoulders hurt... I hate this! Right now the only pain relief I have are pharmaceutical narcotics which I am not the biggest fan of... But taking a hot bath is kind of out of the question and a cold one does not help achy joints or muscles... At night if the pain isn't too bad I can get away with taking my sleeping medication and ibuprofen and that seems to help me sleep but during the day I'm pretty much out of luck...
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Saturday, June 18, 2011

Progress Update: MS Pain and More Medication

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Well, it looks like it's time to add a new symptom to the list: pain... for about a week now I have been experiencing a muscle or joint like pain in my heels, shoulders, arms, and elbows. Sometimes it radiates down my back a bit or up my neck but it's mostly in my arms and shoulders. My skin, usually on my left arm, also gets really tender to the touch, it's kind of unusual and very unpleasant... At first I thought it might just be a result of exhaustion and fatigue but no matter how much rest I get the pain doesn't go away...
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Thursday, June 16, 2011

What is LDN? Low Dose Naltrexone and How it Works

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First of all there is a lot of information on the Internet about LDN and how it works but I want to explain it in more simple terms as I have always tried to do. Keep in mind that I'm not a doctor nor am I an expert in any way shape or form: I am simply sharing what knowledge I have obtained from my own personal research in hopes of spreading knowledge and information. There are without a doubt many more people out there who know much more about this subject than I do but I am simply trying to promote the subject because I find great interest in it and think that this medication could help many people including myself.
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Thank You Donors!

It just doesn't seem appropriate to say it in any other way, 
THANK YOU SO MUCH!

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Wednesday, June 15, 2011

Progress Update: The MS Plan

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I have been talking a lot about how I'm not doing so well lately but I don't think I really mentioned what the plan is. I heard a quote one time that I couldn't agree with more and it goes something like this:


“A goal without a plan is just a dream”

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Matt Allen G is Back on Youtube!



I still have some setting up to do in order to produce better quality videos but I just wanted to give the people a heads up that I will be back on You tube hopefully producing content that is informative, helpful, fun, and more! I'll keep you posted and for all my followers these videos will be posted in the "Media" section of my blog which will also be getting a makeover soon! Enjoy!
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Tuesday, June 14, 2011

Progress Update: Saved by the Music

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So far I'm off to a decent start today, I slept well, the air is cool, and my joints no longer hurt as bad as they did for the last few days. I don't have much of an appetite which could be a result of me tapering off of my antidepressants. All I had for breakfast was a banana and at 1 PM I am barely making lunch. There is nothing I hate more than knowing I'm starting but having no appetite whatsoever... Forcing myself to shove food down my throat to keep myself alive is hardly appealing to someone who usually loves to eat... Aside from that though, I'm feeling okay today.
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Monday, June 13, 2011

Progress Update: Dictating the Last Few Days

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Earlier today I said that I probably would not be online as much for a while because I have not been feeling too well. Well I decided that rather than sitting around doing nothing I might as well do some writing but I just could not concentrate through the pain, heat, and fatigue. So the first thing I did was install my window A/C unit which has been sitting in the garage for ever. Just having a cool environment has made me feel so much better already! I don't feel as fatigued as I have for the last few days.
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Friday, June 10, 2011

Progress Update: 4 Days Without Any Medication

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June 5th was my birthday and that morning I took all my medication like a good little boy with a demyelinating autoimmune disease but once I arrived in Palm Springs I decided that I wanted to take another brake. Now I was going to keep taking my steroids and some of my other pills but I actually forgot to take everything... The next day I forgot again. The following day I realized that I had not been taking my steroids and I wasn't really dealing with horrible withdrawal symptoms! I was at about 10mg a day when I stopped and now it's day 4 without medication and surprisingly I feel ok. I have been rather tired lately and had a horrible time trying to sleep the other night but this is more then likely not a result of me stopping my steroids but rather a result of me not taking my sleeping medication... The fatigue, well, you know, that;s just a part of MS.
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Wednesday, June 8, 2011

Progress Update: Alcohol, Heat, and Strenuous Activity

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Alright, some of you may have noticed, I have been pretty inactive online for the last few days. Well June 5th was my 21st birthday and I spent Sunday through Tuesday in Palm Springs with a buddy of mine. I was supposed to go to Vegas but I was a little short on cash so I settled for Palm Springs. This is a tottally different scene for those of you who have never been there. Not to many young "party people", nope, mostly old folks and couples. Definitely great for a couple wanting to get away and relax for the weekend but not ideal for two single guys, not that I am even the party type haha!

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Thursday, June 2, 2011

My Emotions: Depressed yet Again

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This may or may not have anything to do with MS, really, I don't know, but it is however part of my life and effecting how I interact with my MS so I shall write about it.

Lately I have been battling depression like I have so many times in the past but today I am finding that I am entering the realm of morbid depression. I find this to be much worse then the stereotypical "debilitating depression" I typically encounter. When it comes to that kind of depression it simply requires that one fights a little harder to make it through the day. Now this is in no way shape or form easy I'm just simply saying that what I feel today is different. What I feel today is less like a bag of weights on my shoulders and more like a burning flame upon my back... It takes a little more then some extra struggle to force this depression to subside.

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Wednesday, June 1, 2011

Progress Update: I've Been So Drained

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First of all let me just say sorry for not writing in almost a week! That's not like me but man have I been so drained lately... I have no energy probably because I am once again almost off Prednisone... 10mg a day just isn't enough to give me that extra boost so it will be interesting to see how I feel when I am completely off it. Probably going to suck but I am still looking forward to it...

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