Monday, January 17, 2011

PhotobucketI recently started a personal research project with a buddy of mine to learn as much as we can about Multiple Sclerosis, it's cause, and it's possible cures. Last night I was researching myelin regeneration (as I have a feeling this should be a huge focal point in the race to cure MS) and I stumbled across the "Myelin Repair Foundation".

"The Myelin Repair Foundation is the world’s largest non-profit research organization exclusively focused on developing the next generation of MS treatments—myelin repair."

Now I have yet to finish my research on myelin regeneration, in fact, I have only looked at the top of this iceberg. But strictly from a mechanical point of view, in my opinion, if you can repair damaged myelin while preventing T-Cell's from destroying oligodendrocytes (cells that produce myelin) then you would in theory be attacking the source of the symptoms we MS patients experience rather then just treating the symptoms themselves.

This wouldn't cure MS as there is still the actual source that leads to the Myelin being attacked in the first place but if you could work on controlling the "second source" of this disease you could possibly eliminate the symptoms associated with Multiple Sclerosis as long as you could maintain the damage done by T-Cells while keeping myelin growing faster then it can be destroyed.

Now keep in mind, what I just said is based off my own developing theories and speculations of MS and I am obviously NOT a doctor. I'm simply a guy doing research at home trying to learn more then the "Average Joe" regarding his own disease. But my basic model goes as follows:

1) Source of disease (Theories Obviously Vary)

Leads To

2) Demyelination

Leads To

3) MS Symptoms

So like I said above, right now the medications we take currently only tackles #3, but if you were to tackle #2 it would in theory tackle #3 as well. Of course, if you were to tackle #1 It would cure everything but I think right now there are just too many different theories to really get anywhere with that so focusing on regenerating myelin just seams like the obvious next best thing to me. But again, I'm no doctor, I could be totally wrong here which is why I still have much more research to do!

I usualy try to only post content on my blog that is actually mine but every once in a while I may make some exceptions. Below is a couple of videos from the Myelin Repair Foundation that I think are worth watching if you have MS or want to learn more about it.




Oligodendrocyte: Cells that produce Myelin

9 comments:

  1. Matt, Have you looked into these 9 steps for treating your MS? Dr. Mark Hyman's article outlines everything I had been searching for with my daughter.

    http://www.huffingtonpost.com/dr-mark-hyman/how-to-stop-attacking-you_b_657395.html

    Hope this helps you.

    Melinda

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  2. I just finished reading that article, It will definitely help me in my research because much like the doctor who write the article, I want to treat the underlying cause of my disease rather then suppressing my symptoms with a pharmacy full of medication. Thank you for sending it my way!

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  3. Hi Matt,

    Thank you very much for the "shout out" to the Myelin Repair Foundation! We appreciate your bravery in sharing your story with the world, and are so glad that you found us through your research. Like you, our President & Founder Scott Johnson was diagnosed with MS at the age of 20. He also strongly believes that myelin degeneration will play a big part in the race to cure MS, which is why he founded the MRF. As we move closer to a clinical trial, we remain confident that a myelin repair therapeutic is in our future!

    We wish you best of luck in your personal research, and commend your efforts. I hope you continue to take the time to stay updated on our research (if you haven't already you can sign up for our online newsletter here: http://bit.ly/fZLJ8J). And if you have any questions about our work or would like to get involved please don't hesitate to call our office any time!

    Warm regards,
    Beylah Redke

    Myelin Repair Foundation
    www.myelinrepair.org
    1-877-ToFixMS

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  4. I honestly can not remember if I signed up for it or not, my memory is horrible, so I will do so again just in case! Out of curiosity, how did you stumble upon my blog??? I will be sure to stay on top of your foundations research as it is of great interest to me!

    Thank you!

    -Matt

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  5. Great, Matt! We always have our radar set for bloggers who are mentioning the Myelin Repair Foundation or interested in our research, so you must have popped up in our feed. :) Thanks again for the shout out, and keep up the great work and writing!

    Best,
    Beylah

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  6. Oh I see, nice! Well thanks for stopping by! Ill be sure to keep an eye out on you guys as well! Thanks!

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  7. Matt - Good to find your site - I have had ms for 7 years... and I hear you. It sucks. I have never used any pharmaceuticals and have treated the body, mind and spirit with different approaches. I really love your site and how wonderfully passionate you are about figuring out how to heal you! - I will be visiting often! - Megan

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  8. How has your "alternate" treatments been working for you? I am interested in all different approaches!

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  9. hi Matt i have been identified white spots in mri, my problem is fear, anxiety, less connection between senses and the action i do, poor listening and communication skills, depression and lack of social life. Does all these relate myself to ms. how can i treat?

    ReplyDelete

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