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About Me

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My name is Matt and I am 22 years old living with Multiple Sclerosis in SoCal. Most people fins me via my blog at http://www.mattsms.com and I work to connect people with MS from all over the world of different ages, genders, and walks of life.

Friday, November 26, 2010

The Disassociation of My Body

PhotobucketSince I was diagnosed with multiple sclerosis my body has experienced many ups and downs and of course this results in ups and downs with one's psychological well-being. However, I have noticed lately with this second "relapse" or "flareup" or whatever you want to call it, that I have felt a certain disassociation with my body as if who I am as an individual has nothing to do with my physical body, like my body is simply a vessel for my mind or spirit, however you choose to look at it.

What is it that I mean you ask? Let me put it this way, when people have been asking how I am doing in the last few days, I've noticed that I talk about my body and its defects the way I would talk about my old truck and its defects, like my body is just an old car that needs to be replaced, a piece of machinery that is malfunctioning that I have to deal with til I can afford to replace it...  For example, when asked how I am doing, I don't say "I am having trouble with my left hand" but instead I word it like "My left hand is shutting down, it's pretty much useless at the moment". Maybe it's just me who sees a difference in that wording and attitude, but that's what's important, the simple fact that I feel disassociated with my body.

 I'm not sure what to make of this, on one hand it seems like this mentality could be used to my benefit to help protect my mental and emotional stability but on the other hand this mentality can be dangerous because in reality THIS IS MY BODY and I only get one body in this lifetime so I need to do everything I can to maintain this "old truck" and keep it running as long as possible, though I may hate this piece of junk "truck" it's what I have to work with...

I don't know why I feel so disassociated with my body lately and I don't know what to make of these feelings, I just know that whether or not I ever feel "whole" again I have to maintain this body, this vessel, because it's the only thing linking me as an individual to the physical world we know as life.
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Monday, November 22, 2010

Progress Update: Possibly Exacerbation 2

TimeSo today I had a neurology appointment to go over the sudden appearance of symptoms I have been experiencing... The pins and needles don't seem as bad in my legs today though I could just be getting used to it, however, my left hand is definitely getting worse... It feels very stiff, almost even cold, and my fine motor control is starting to fade away once again... This of course is on top of the pins and needles which I could care less about at this point, I hate being clumsy, I want full control of my body! That's ll I really care about!

Anyways, I asked my doctor if it was common for MS patients to experience random flareups or if she thought this was the beginning of another exacerbation, she went with option two... So I'll be tapering off my oral steroids this week so that next week I can go back into the hospital fore a five day IV steroid treatment... Fun... I won't complain though, it could be way worse, I'm hoping that since this isn't a full-blown exacerbation at the moment I will react to the steroids very well. So though part of me dreads the thought of having to sit down with an IV in my arm for two hours a day again, part of me is eager because I want to see how fast I will react to the medication this time.

I have to admit, I'm mostly disappointed at how short a period of time I got to experience my so-called remission... I really thought I would go way longer than this before relapsing, this just goes to show how important it is for me to maintain my diet and keep my stress levels down, MS seems to be a very sensitive disease! I'll be sure to keep everyone posted on my progress, wish me luck!
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Sunday, November 21, 2010

Progress Update: Pins N Needles

Pins N NeedlesWell, its been a few days now and still that feeling of pins and needles has not gone away... It hasn't really got worse but it definitely has not got better, although, it does seem like my fine motor control is starting to fade in my left hand... My hand feels stiff as if I had kept it under ice water for a very long time which is making things like typing very difficult again. Right now I am actually using my voice recognition software as I had to a couple months ago because my fingers just can't keep up, they are clumsy and stiff....

I really hope this is just a minor flareup that will fade away soon because if it is the beginning of another exacerbation I'm going to be really mad, I didn't get very long of a break if that turns out to be the case... It's amazing how fast all this can happen from out of nowhere, I'm assuming this is stress related, so it's also amazing how sensitive my body can be to stress even while I'm on all these medications! I could be wrong though, stress is just my own assumption, it could just be a huge coincidence that all this happened at the same exact time I was stressing out... Who knows... I just know I want this to go away, I don't have time for this right now, I'm trying to get my career going, trying to start my life, trying to make some money, I don't have time for this! Wish me luck!
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Friday, November 19, 2010

Progress Update: A New Symptom...

So just as I was talking about doing so much better a new symptom has come up... Paresthesia, or, the feeling of pins and needles. It started yesterday evening in the tips of my fingers on my left hand and in my toes on both feet, just a minor sensation much like when a limb falls asleep, no big deal right?

Wrong.

At first I thought it might have been nothing, just a result of sitting down all day typing. By the end of the night my whole left-hand was tingling and the bottom of my feet as well... When I woke up this morning I was literally shocked to realize that I now had the sensation from my waist down and in my entire left hand, it is very unpleasant!

Think about the last time your leg fell asleep, it gets all tingly and feels weird when you touch it right? Well that's how both my legs feel right now, even touching my legs with my hands feels uncomfortable, sometimes almost painful. This came out of nowhere! Literally within 24 hours I went from almost no symptoms to pins and needles everywhere!

 I'm not sure what triggered this, I have been somewhat stressed lately, I've had a lot on my mind, and it's been kind of warm lately, but not too bad. In my opinion I would say this is mostly a result of emotional stress and partially a result of the physical stress I put my body through when I went riding in the desert the other day. It was a great workout, I am sore from head to toe and I think all that muscle tension might have contributed to my body's overall stress levels.

At this point I am just trying to relax and let my body rest... I am also taking cold showers/ baths in hopes that the temperature will help reduce inflammation although I highly doubt it will medically help much, but it does help me relax and I think that's what's important, the reduction of stress!

I really hope this goes away soon and is nothing more than a minor flareup, like I said, it is very unpleasant and annoying! I will keep you posted, thanks for reading!
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Thursday, November 18, 2010

MS-Vietnam.Org INTRO - Help Spread the Word!

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Progress Update: What it's Like Living With MS Part 2

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Wednesday, November 17, 2010

Progress Update: The Picture Says it All

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Though I do have to admit, my gate (walking) has been a little off in the last couple of days but I have been a little stressed lately and today I am exhausted! But either way, who cares! Look at me on a quad! I didn't think I would ever ride again and here I am balancing on 2 wheels! This made my day!
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Tuesday, November 16, 2010

Sorry it's Been So Long!

So I have not written in a long, long, time on here.... I have been sooooo busy! I am currently trying to get my career as a photographer up and going and I have been focusing all my writing time on my novel, I should be done with the first draft tomorrow, yay! So keep an eye out for updates on my Blog, I will be resuming my MS writing very soon!


Photography
My Personal Blog
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Thursday, November 4, 2010

Can Suffering be Measured?


suffering


Because of my current health situation I have been told by so many people “Oh I am so sorry, that's so horrible, I can't complain about my life now, you have it way worse then I do”. This makes me think to myself, can suffering really be measured? It may be true that there is always going to be someone else out there who has it “worse” then you, thats life, but, I think when you look at it from that perspective you should be using that statement as a means of controlling your own complaining, not as a means of belittling your suffering because in reality, what defines someone as really being “worse off?

What do I mean you may ask? Well I always try to explain this and I always fail to do so properly, so let me try to put it into words that actually make sense. Keep in mind that when I refer to suffering, I am referring to the mental and emotional well being of an individual, not their life situation. For example, lets say a man was born into wealth and lived his life getting everything he ever wanted or needed handed to him. Sure he is in a good life situation, one of which he has nothing to complain about, but maybe he has never had a true friend, maybe he is lonely, and therefore, suffering emotionally.

Lets flip that scenario and look at the other end of this spectrum. We are now looking at a man who was born without a supportive family, no money, barely any food, etc. A horrible living situation providing every reason to complain. Though his life situations is poor, this man is actually much happier then the rich man because he has close friends, he knows how to appreciate the little joys in life, he is mentally and emotionally much healthier. He may be able to recognize that his living situation is poor but he never lived with wealth, he isn't emotionally8 missing out on anything because he has never had it to loose it.

These are two really bad examples I am using to make my point, but what is important s that you understand the concept of this contrast so my next example will make more sense. When I ask myself, “can suffering be measured” what I am referring to is the idea that we as individuals can only compare our level of suffering to what we have felt throughout our lives.

So now, my second example, physical pain. Pain is pain wether it be physical or emotional, therefore, can physical pain me measured and compared to others? No, we only know how to compare our pain to the pain we have previously felt in life. A small child who gives themselves a paper-cut might consider that to be the most painful thing in the world. But to a 40 year old construction worker that paper cut is nothing because he has experienced much worse in his own life, but at that point, is it fair for the construction worker to tell the child they can't complain, that it's not that bad, well, in my opinion, no. To that child, that paper-cut is something worth complaining about, its the worse thing that child has ever experienced, Sure others have endured far greater pains but that child has no means of comparing their pain to that of the worlds worst tortures. He can only compare his pain to any previous pain he has felt in his life.

Now, think about that concept and apply it to emotional pain, mental well being. You may see an individual stressing out or breaking down over something you think is stupid but don't be so quick to judge because maybe what ever situation is breaking them apart is the worst situation they have ever been in, it seams stupid to you because you may have experienced something of that magnitude or worse but again, maybe they haven't just like the small child's paper-cut.

So when people tell me that they can't complain because I obviously have it way worse then them I say “No”, in fact, I encourage them to complain because yes, my situation is not a pleasant one, but I have no right to use my situation to belittle the pain another individual may be feeling because as I said before, you can only measure your level of suffering based on what you have personally felt throughout your life.

Now though I sarcastically encourage people to go ahead and complain in front of me I am not saying that this concept is an excuse to freely complain about everything, because you should still bare mind that your situation could always be worse, I am simply saying that it is ok to feel the pain you are feeling, that you shouldn't belittle your emotions because someone just so happens to have a worse situation then you do. Like pain, emotions are emotions and you are going to feel them regardless of logic and reason, what is important in my opinion is the ability to identify that yes, you are suffering, but it could be worse, it is important to be grateful that your situation is not as bad as it could be even though to you, it is horrible, and feeling that way is ok.

I don't complain that I have multiple sclerosis, I don't feel bad for myself, instead, I am grateful that it is not worse because I couldx have cancer or AIDS but I don't, and for that I am truly grateful. Of course, I will still inevitably experience different negative emotions regarding my MS but I think that it's ok because for the most part, I know it could be way worse but luckily, it's not so I don't really see any point in complaining.
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