Now, moving on, the update on my healthcare situation here… This relapse (or what ever you want to call it) really started in February and ever since then it has been one hell of a battle to make the switch to Lemtrada. First I had to wait 6 weeks for the Tysabri to wash out of my system. Then it was “oh yeah, you need the Zoster vaccination) so it took about a week to get in for that and then I had to wait 6 more weeks for that to wash up. At the beginning of that 6 week period of time I was told I should get a call to schedule my infusion date in about 2 weeks, awesome! It’s so close! Or so I thought. I called in 2 weeks since I had not been called and no one even saw an order in the system stating that I need an appointment. This is when my typically long lasting patience ran out. I can’t see, the world is spinning, I feel nauseous and I was getting so week it was getting hard to walk! I am calling and calling and calling and just being the squeakiest wheel I could be. I end up getting nowhere and the 6 weeks is up and I had an appointment with my neurologist, which is when I expected to go over last minute details regarding Lemtrada. Instead I got to voice how unwell I felt and how unhappy I was with this situation. He was unhappy as well and said he has been having issues with these ladies “upstairs” just dropping the ball lately. He started making “angry phone calls” and assure me he thought he could get me in by the following week. “Call at 5 and we should have an appointment set”. I call at 5 and talk to the main nurse who I really do not trust. Now all of a sudden it’s “I don’t know how long this can take so don’t ask me but it could be at least a month before I can order anything including blood work you have to do”… wait… why are we doing this just now? We had all this time I could have done it!